Alan’s Progress – raising awareness for MND

60′s DISCO CHARITY NIGHT – raising awareness and funds for MNDA

A huge thank you to all attended and participated in the recent 60s Disco Night raising funds and awareness for MNDA (Motor Neurone Disease Association) through ticket sales, bar and the grand raffle.

A fabulous ambience was set by utilising the VH lights together with some generously loaned ‘disco lights’ which encouraged a full dance floor for the whole evening.

Music was provided by the talented Midnight Sapphires trio belting out all the best dance tunes of the 60s.

A grand raffle was drawn on the evening giving a huge range of prizes from bottles to meals out, 4 x 4 driving adventures and many more, thank you to all for the generous donations.

Sincere thanks go to Rachel and Simon Beacham for organising the event, raffle ticket sellers, The Midnight Sapphires, Martyn for running the bar (dangerous), all who donated so generously, Courtenay Fairbrother for helping to tidy up and all who attended on the evening.

Our kind thoughts and best wishes go to Hazel and Alan Carter who gave a few emotional words during the evening; Alan has been diagnosed with MND and was Simon’s business partner for 20 years.

SB/RB

Local companies and suppliers very generously donated some lovely gifts, to name a few, thank you very much!

Abbey Hotel, Redditch – afternoon tea for two

M&W Flooring – Bottle of scotch

PJA Electrics, Redditch – £50.00 Miller & Carter Voucher

BRIGHTON MARATHON – IN AID OF MNDA

ABC Solutions Managing Director, Simon Beacham, ran the Brighton Marathon on Sunday 15th April in aid of ABC’s chosen charity MNDA (Motor Neurone Disease Association).

A Just Giving page had been set up and raised £1,200.00 to help MNDA whose Mission is:

To improve care and support for people with MND, their families and carers.

To fund and promote research that leads to new understanding and treatments, and brings us closer to a cure for MND.

To campaign and raise awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by wider society.

It was an emotional day, with Alan and his wife Hazel being at the Finish line to see Simon over the line in a time of 3:32:53.

Alan, Hazel, Simon and his wife Rachel and daughter Maddie spent valued time with the MNDA Events Team in the Event Village after the race, to share stories and special time in the company of people effected by MND, directly or indirectly, and fellow runners raising money for this cause.

ALAN UPDATE 10/05/18

Alan is improving his mobility, due to his weakening leg, core and back muscles, with the aid of his new lightweight wheelchair (the powered version is on its way). His left arm is weakening so he is requiring a little more palliative care from Hazel. It’s frustrating for Alan and Hazel but they face the challenge of each new day and take on the challenges even though inside it hurts and they have to fight away the tears.

Some much needed rest is planned following their recent holiday in Vietnam which provided some great memories together with following (in the car) the Deadlegz team on the final 3 days of their Lands End to John O’Groats cycle ride, raising money and awareness for MNDA

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The Autumn 10k ARMY now comprises of people who are running 10k events in different locations, so we have raised our target total to £10k.  Huge thank you to everyone who has donated and good luck with the training to the ARMY.

If you would like to donate, please click on the link below.

https://www.justgiving.com/fundraising/hazel-hodge-carter1

Alan & Hazel – Vietnam –  May 2018

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ALAN UPDATE 20/02/2018

Accompanied by the support of my loving wife Hazel, its been a long day in Sheffield but all gone well. I have met the trial Doctor and one of the 2 nurses managing the trial. In 7 hours they did a physical examination, lung function test, ECG, cognitive assessments, blood taking (18 Phials in all – some of which is heading over to France,) and a Lumber Puncture which look longer than expected.  Starting Riluzole tomorrow – yippee!

I’m  the 79th person across Europe on the trial. I now have a whole schedule of monthly blood tests  ( to check “ Rilly “ does not damage my liver and kidneys), monthly phone calls from Sheffield to check how I am, half a dozen dates to do retests of most of today’s things and two more Lumber Punctures to enjoy ( not ) over the next 2 years.

The fight against MND ( now known as the Mean Nasty Disease ) has begun !!!!!!

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